As a family physician and advocate for the use of technology to enhance patient care, I have watched with great interest the development of personal health records. The future potential benefits are significant, providing individuals with a personal view of their health status and the ability to interact with their physician(s), and other caregivers, particularly in relation to specific disease conditions.

As with any new technology, there is always a heightened sense of expectation. How much information, how soon can it be accessed what types of information? These are questions that will be answered as we become more comfortable with personal health records and exactly where they fit into care delivery.

Change does not happen quickly and in fact healthcare is very resistant to new treatments and processes. Beyond the obvious capability of patients to be able to manage their personal health information, the value of the PHR will depend on the quality and how applicable the information is that can be accessed through the PHR. This is going to take time.

The information in the PHR has to be timely (quicker to access than traditional mechanisms), accurate (trusted by both the providers of care and patients), relevant (usable to the individual in managing their health or that of a family member) and available (with less effort than through traditional mechanisms).

These are tall orders that are not just dependent on wants and needs of the user of a PHR. They require significant chang e in the way information is managed and as a result, will require an evolutionary change.

The important question to ask is ‘Are we heading in the right direction with personal health records?’ I believe so, but also think that we must set realistic expectations.

If a PHR is able to avoid just one significant drug interaction or alert an individual to a critical event, does that justify the value? If you were the individual on the receiving end, I would hazard a guess that you would say yes. Over time, we will learn where the PHR fits most logically and where it provides greatest value.

Personal health records will evolve as the healthcare system changes and I have no doubt that there will be critical stages of development. In the early days, these stages will be small and may not even be noticeable. However I strong believe that at a future time, we will look back and ask ourselves how we ever managed without access to our PHR and the convenience, capability and functions that it offers us.

I am interested in your comments regarding personal health records and the value you see now and in the future.

 

Comments

6/4/2010 11:37:23 AM #

The Personal Health Record is, I think, a vital link in moving to a better health system overall. On its own, there is usefullness for those suffering from chronic conditions in being able to record blood pressure readings, blood sugar levels, etc., and to share those with their provider (or provider team), and access to trusted health information in context can be very valuable.

As the EHR activities in each province mature and are able to supplement the PHR with other useful clinical information, self-management of chronic conditions will be enhanced. As this interoperability with the clinical EHR begins to support eReferral, then the ability to make appointments, to receive appointment information based on case management protocols and so on, will enhance compliance and improve health prevention activities.

All of this requires an informed and enabled patient, a PHR that is compliant with Pan-Canadian interoperability standards for health care, and fully deployed Provincial EHR initiatives.

I believe that the future is bright in this respect. We will see this all roll out incrementally ... and each increment will provide real value to each of us.  

Bruce Laidlaw Canada

6/8/2010 5:20:35 PM #

As someone who is deeply involved with EMRs, I believe that there are many patients who would like to have access to information in their patient chart maintained by their physician. But what is still not clear to me are the areas of high value.

Getting access to lab results and other clinical information requires a much more complex system than having access to tools that help with time and disease management.

For example, what do you think about the following:

Tools that you can set to automatically send reminders to your email account or text message to your phone if you need to have certain tests done or if your doctor is running late?

The ability to request appointments online?

The ability to request prescription renewals online?

If you could do these three things through your PHR, how valuable would that be to you?

Alan Brookstone Canada

6/30/2010 1:33:51 PM #

Marelene, depending on where you are in the country, there are programs offered at various institutions. If your interest from an IT perspective:
University of Victoria has a Health Infromatics Programme
Dalhousie University (Halifax) also has one.
I believe that Memorial has one (St. John's) and I know other places are looking at it (RyersonI believe.)

If from a clinical perspective .... perhaps someone else can add something.  CIHI - Canadian Institute for Health Information runs the odd course now and then as well .... you might check out their website.

Bruce Laidlaw Canada

7/11/2010 5:49:03 PM #

Live in BC. Am 77. Went to Dr about 3 times in 50 Years. Last 3 years had one major and 3 minor surgical operations. The same info, incl Rx data that is available on line, was collected each time.
Concern in the US about adverse use of online health dara should not be a factor in Canada. My premium will not increase whatever health care I need. With only One insurer in each province, using data now online, expansion of online health record should be far easier in Canada than the US.

Colin Turner Canada

7/1/2011 2:10:12 AM #

I believe that the most important aspect of the Personal Health Record is the cultural change it facilitates. It provides the individual with a basis for taking control of their healthcare delivery by being in charge of their information. Whilst initially this may only appear to be symbolic, it does enable those individuals who wish to be more proactive about their healthcare and willing to take the responsibility of becoming the manager of their healthcare services access to the same tools as their providers.
However with the power also comes responsibility, and there is a huge need for health literacy education for individuals to enable them to responsibly take control of their own healtcare ecosystem.

Dr George Margelis Australia

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